article June 14, 2021
Widening the Lens: From Patient Engagement to Community Engagement
To truly engage patients, we must incorporate their community support systems.
Community engagement contributes to both general research awareness and study- specific patient engagement. Communities as a whole need more education around clinical research, its importance, and specifically, why diversity of participants in trials is so vital. As a result of COVID-19 vaccine development, the general public has a better understanding of clinical research and the importance of diversity in trials; now is the time for us to act for the benefit of all. IROs represent a bridge between healthcare partners and community organizations to help change the clinical research narrative through education and awareness. All aspects must be considered, such as understanding a population’s network of influence within the community
“Addressing the alarming gap in time-to-market primarily driven by prolonged patient accrual requires expanding awareness and access to clinical research as a care option within communities.” In this PharmaVOICE article, Javara Patient Experience Advisor Alycia James, and VP, Partnership Development Amanda Wright, dive into what it means to expand our perspective, focusing not only on the patients but on their communities as well, and how greater community engagement impacts the landscape of clinical research.